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Who we are

Belongside Families is an independent, not-for-profit peer support organisation for families of children with disability, developmental delays and autism. We help families to navigate complex disability systems and services and build the skills, knowledge and confidence that will see their children and family thrive. Our peer groups and programs, trusted resources, and supportive community are online and free. We're passionate about all children and families living their best lives and discovering a future full of possibility.⁠

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What we do

Support

Parenting a child with disability or developmental delay can feel overwhelming. Our trained Peer Workers can help you to navigate the various systems and services, understand your child's disability and provide guidance in accessing community and mainstream supports.

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Connection

We know that connecting with like-minded parents and caregivers can change everything. We provide opportunities for families to come together for support and to share and learn from each other. Our peer groups are delivered online and are a safe and inclusive space.

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Education

Our online programs, workshops and webinars are based on best practice, evidence-based approaches. We believe in empowering families, so they are equipped to navigate systems and have the skills needed for self-advocacy.

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Resources

Drawn from the lived experiences of our team and families, our practical tip sheets and resources can assist you in making informed choices. The stories shared by parents and people with disability can help you to feel more positive and hopeful for your child and family’s future.

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No family should start their journey alone

Help us reach families navigating a new disability diagnosis for their child.

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A word from our community

“This is my protected timeslot. It is saved in my calendar and my partner knows that this is a non-negotiable for me. I have learnt so much from everyone in the group and I love being able to share and help other parents.” 

I just wanted to thankyou for what you are doing. It was wonderful to come across a page that is so positive! I get so overwhelmed and depressed with so many groups but this one has really helped and encouraged me. Thank you.

Belongside Families’s workshops have been practical and specific. The fact that the team are all parents with a disabled child themselves makes them a unique organisation. They create a culture of acceptance and acknowledgement, by sharing their experience with disability and valuing ours. It’s this sense of community that has helped me normalise and acknowledge the challenges. They are knowledgeable and connected and have helped connect me with other services.

My experience with Belongside Families has been AMAZING! When my children were diagnosed it was very much a “what now?” response. All of the therapies targeted them, but I knew that I was a huge part of their life so why wasn’t there any help/training/advice for ME? Like if I was able to do MY best then how much better could they be?! Belongside Families was that for me.

Belongside Families provides a much-needed source of positive parenting information and community support for special needs families. I highly recommend this invaluable service.

Connecting with Belongside Families and the wonderful empowering programs they run, and resources has been life changing for our family.

Belongside Families has provided the platforms to challenge old thoughts, tackle and create new ones! Thank you.

Belongside Families has created an essential community for parents and carers. The team at Belongside Families have created a village for families walking a similar path. Some are a little further along than others and some are deep in the trenches just be starting to navigate their way.  But although every family’s path is different, we are all walking together in solidarity. This community creates strength & moves us forward with hope. When we have the right support, anything is possible.

I love being able to learn off other parents. I equally, if not slightly more, love being able to help other parents. It feels so good to be connected to a community – to MY community – through Belongside Families. I’ve had chat conversations with strangers for an hour who I’ve helped solve problems with, and vice versa. It’s such a crucial network for our well-being as parents and when we feel in control and informed them, we can support our kids to the best of our abilities.

Feeling connected with other like-minded & supportive other parents who are living similar (never the same) experiences, is empowering and comforting – I no longer feel alone – Thank you Belongside Families for assisting me to feel engaged & connected.  Since becoming a member of the Belongside Families family, I have been able to improve my skills as a parent of a child with a disability and strengthen my attitude to be a ‘can-do’ motivated & confident parent!

All the information that is provided is valued and I can become a bigger advocate for both of boys who have disabilities but also a more confident and stronger advocate for the disability community.

Belongside Families is a trusted and safe place to access invaluable information and support to help our family thrive.

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Don’t worry, we’re not here to overload your inbox. What you’ll get from us will be inspiring stories, details of upcoming events, helpful resources and other opportunities to be part of our community. From our family to yours, every fortnight or so.

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Join our community facebook group

To connect, celebrate and learn with parents and carers on their own beautiful journeys. Ours is a safe space where you can come to ask advice and share experiences on anything from your child's diagnosis to navigating the NDIS.

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Looking for school holiday activities that are fun and accessible?  In this post we cover some inclusive activities in Sydney. If you know of accessibility programs in other parts of the country, feel free to drop a link in the comments. ⬇️  🎬 HOYTS: Monthly sensory screenings are available at some cinemas. Select ‘Sensory Screening’ from the filters section to find a session at your local cinema.  🎨 Art Gallery of NSW: Provides a range of programs for children with disability, and it’s wheelchair accessible with accessible bathrooms and changing facilities.  🦖 Australian Museum: Periodically, the Australian Museum opens early for children with disability. They also host sensory nights for teens aged 16 and up with disability. They are also wheelchair accessible with accessible changing facilities.  🐠SEALIFE Sydney: Has a dedicated sensory room and they are wheelchair accessible throughout.  They are also hosting a quiet morning for children with disability on Sat 23 August.  ⚓️ Australian National Maritime Museum NSW: Is wheelchair accessible and hosts sensory-friendly days for a quieter experience for guests with disability. The next one will be held on Sun 20 July.  🐘 Taronga Zoo: Is wheelchair accessible and periodically opens early for guests with disability. On Tue 8 July and Mon 14 July, Taronga will have Auslan interpreters onsite to provide interpreting for keeper talks and animal presentations.  🖼️ Museum of Contemporary Art: Has a dedicated sensory room and is wheelchair accessible throughout with lifts and accessible toilets. It also runs various disability programs.  🌟Shine Sheds: are fully accessible, all-abilities play centres located in south-west and north-west Sydney.  🏞️ Inclusive Playgrounds: The Touched by Olivia Foundation has consulted on the design of dozens of inclusive playgrounds around NSW. Called Livvi’s Places, these playgrounds offer young people with disability spaces to play, side by side, without discrimination or prejudice.  🌻Don’t forget your Hidden Disability Sunflower Lanyard. It indicates discreetly that you may require understanding and additional assistance.  🔗 Visit Linkin.bio for more details
"I will not for one minute sugar coat our journey. ⁠
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It is tough – some days more than others. ⁠
Often full of heartbreak, fear and uncertainty. ⁠  We are constantly second-guessing ourselves and our decisions.⁠
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But caring so deeply for someone who faces daily hardships brings with it a certain clarity. A fresh perspective, and lessons that should be shared ..."⁠  Pam, from Belongside Families and mum to Christopher, shares just a few of those lessons:⁠
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🧡 Don’t Sweat the Small Stuff⁠
Christopher’s struggle to survive, his bravery to live, and the smile he continues to share with us puts it all into perspective. Things which would have once consumed our energy, we now let wash over us.⁠  🧡 Gratitude and Grief can be Friends⁠
While I grieve the boy who could have flung his arms around my neck, I’m beyond grateful for the beautiful boy who looks up at me with such love and adoration when I cradle him to sleep.⁠  🧡 We Are All Human⁠
Disability or not, we all want the same things — to belong, to be accepted, and to be loved just as we are. That’s true inclusion, and it should be accessible to everyone.⁠
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This journey changes you. If you feel comfortable, we’d love to hear what your child has taught you. Feel free to share in the comments below.
There’s more than one way to say “I love you.”⁠
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It shows up in tight hugs.⁠
A face that lights up when you walk into the room.⁠
A flap, a giggle, a sound of pure joy.⁠
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For lots of families, “I love you” doesn’t always come out as words.⁠
But it still comes through, loud and clear.⁠
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For @breepennie son Dax, it’s full-body joy and happy sounds that fill the room.⁠
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How does your child say “I love you” without using words?⁠
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We’d love to hear. 🧡
This one’s for the parent who wonders if they’re doing enough.⁠
Who questions every decision.⁠
Who carries the guilt of not doing more.⁠
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When you're raising a child with disability, those thoughts are so often on your mind.⁠
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In our Good Life series, we spoke to young people with disability about what made the biggest difference in their lives.⁠
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And there was one thing we heard time and time again:⁠
“My parents”⁠
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They talked about support. They talked about sacrifice. They talked about you.⁠
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So on those days when you question whether you are doing enough…⁠
This is your reminder: you already are.
✨ Meet Belinda: Peer Support Facilitator at Belongside Families ✨ ⁠
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Belinda is an experienced community advocate with more than nine years of supporting individuals with disability and their families. ⁠
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Previously she served as Manager for Community Groups at Autism Community Network, where she led peer programs, facilitated inclusive events and supported families in accessing vital services. Later, she worked with Zen Tea Lounge Foundation, where she delivered programs and initiatives focused on self-advocacy, multicultural inclusion, and empowering women to gain employment, while also championing the rights of adults with disabilities to access meaningful and inclusive job opportunities. ⁠
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👨‍👩‍👧‍👦 It was her own family’s journey that motivated Belinda to shift her career towards the disability/not-for-profit space to help give back to the community. She aims to help as many families as possible. ⁠
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💁‍♀️ In the role of Peer Support Facilitator at Belongside Families, Belinda is currently facilitating events for families in Western Sydney. ⁠
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🐈 A fun fact about Belinda is that she owns a cat and a canary. ⁠
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✈ Outside of work, Belinda likes to travel overseas, and enjoys walking, gardening and cooking. ⁠
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🧡 Belinda hopes that her work helps families feel less alone and more connected to a community that truly understands and supports them. ⁠
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Everyone on our team is raising a child with disability, delay, or autism. That lived experience is at the heart of everything we do — and it’s what makes Belongside Families different. ⁠
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#BelongsideFamilies #WalkingAlongside #FamiliesSupportingFamilies #BelongsideCommunity #ByFamiliesForFamilies #PeerLed #ParentingDisability #BelongsideFamiliesTeam
Last chance! Register by midnight tomorrow to get the full series⁠
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In Beyond the Diagnosis we brought together parents and professionals for four powerful sessions that spoke honestly about the emotional and practical realities of raising a child with disability.⁠
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We’re so grateful to the incredible speakers who shared their lived experience, deep insight, and practical strategies:⁠
Parent and writer @melanie.dimmitt , Helen Poulos from @askcounselling , psychologist Mitchell Woods, Professor Helen Bourke-Taylor from Healthy Mothers Healthy Families, and parents Kelly Reid, Pam Rogers, Sarah Elsleiman from @belongsidefamilies and Atilio Brito from @dads.speak 
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If you missed any of the sessions, there’s still time to register:⁠
✨ Reimagining your parenting role⁠
✨ Dealing with family and friends⁠
✨ When the load gets heavy⁠
✨ Finding you again⁠
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🎥 Sign-up by midnight tomorrow Tues 24 June and we’ll email you the full series to watch in your own time:⁠
https://events.humanitix.com/conversationsrecordings
From 1 July 2025, changes to NDIS travel funding will reduce the travel rate for allied health professionals and limit how much travel time can be claimed. ⁠
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We’ve heard from families who are worried this means therapists may no longer be able to travel to their homes, preschools, schools, or community settings. ⁠
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Belongside Families is very concerned about this change. ⁠
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It is best practice for therapists to see children in everyday spaces. We also know that for many children and families, it’s not possible to attend clinic-based services. ⁠
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We are working with our partners from the Child and Disability Alliance (CAFDA) to raise our concerns to the NDIS. To do this, we are asking for your help. ⁠
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Please take a moment to share how this change could impact your family: https://bit.ly/HaveYourSayNDISTravel⁠
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And please share this post to help other families have their say.
It's time to clear up a few things about daycare and preschool when it comes to children with disability, delays, and autism. ⁠
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There are a lot of myths out there. Things like: ⁠
🤔 Children need to be toilet trained before they start ⁠
🤔 Educators can’t support your child without a diagnosis ⁠
🤔 Therapy is more important than early learning ⁠
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Kristy from Belongside Families is sorting the fact from fiction, so you can feel more confident about navigating your child’s early learning experience. ⁠
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And if you want to know more about how you can partner with educators at daycare or preschool, and advocate for your child in simple everyday ways join our free interactive workshop. ⁠
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Supporting Your Child in Early Learning ⁠
📅 Mon, 23 June, 7:30pm (AEST / NSW Time) ⁠
🔗 Register via Linkin.bio