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Brought to you by Belongside Families and Genetic Alliance Australia
About the Series
Navigating a genetic diagnosis can be incredibly complex — from testing and results to understanding what they mean for your child and family.
This free four-part webinar series, hosted by Belongside Families in partnership with Genetic Alliance Australia, helps families make sense of the genetic testing process and the emotional and practical realities of raising a child with a genetic condition.
Explore the series to hear from clinical experts and the personal experiences of parents as they share insights and practical advice.
Whether you’re just beginning to ask questions or supporting your child with a known genetic condition, you’ll find knowledge and reassurance to help you navigate the journey ahead.
Session 1: Could It Be Genetic
For families just beginning to explore whether a child’s health or development might have a genetic cause. In this session, we hear from a senior genetic counsellor and an experienced parent to learn what signs to look for, how to talk with your doctor, what testing involves, and how to prepare for what comes next.
About the Speakers
- Kathleen LaMarquand, Senior Genetic Counsellor
- Kim Bowan, Parent Speaker
Session 2: The Results Are In
You’ve received genetic testing results — but what do they mean? With insight from a clinical geneticist and a parent with lived experience, this session unpacks the different types of results, when to seek further advice, and how to navigate both the practical and emotional next steps.
About the Speakers
- Dr Alan Ma, Clinical Geneticist
- Maya Pinn, Parent Speaker
Session 3: Could It Be Genetic
Feeling overwhelmed by systems after your child’s genetic diagnosis? This session offers practical guidance on the NDIS, healthcare, and hospital systems. You’ll hear from experienced NDIS and Rare Kids navigators and a parent, with tips for plan for reviews, coordinating care, and working effectively with professionals.
About the Speakers:
- Lauren Buck, NDIS Navigator
- Nika Kulaweera, Clinical Nurse Specialist
- Helen Johnson, Parent Speaker
Session 4: Shaping the Future
Looking beyond the day-to-day, this session explores what lies ahead for families navigating a genetic diagnosis. With a clinical geneticist and an advocate and consumer research expert, we’ll discuss opportunities to get involved in research, preparing for your child’s long-term needs, and finding ways to make your voice heard and advocate for change.
About the Speakers:
- Dr Emma Palmer, Clinical Geneticist
- Kris Pierce, Consumer Research Expert
We are proud to partner with Genetic Alliance Australia, a not-for-profit organisation
that supports people affected by rare genetic conditions throughout Australia.
